Do not let in reanimation to the child: as parents to protect their rights

Do not let in reanimation to the child: as parents to protect their rights

not the first year of fighting for the possibility of parents to be with the child in intensive care. The Ministry of Health of Ukraine has prepared a draft order. His discussion expires on May 12th. The “pills” urge you to carefully read the document and identify all points of contention that can negate the excellent initiative. Comments on the project can still be sent to the address: ul. Grushevskogo, 7, Kiev, 01601 or email Contact person: Tereshchenko L.

How important is the stay of parents with a child in intensive care, only those who are in trouble themselves understand. Until now, the parent has been idle for hours in hospital corridors, by hook or by crook they are looking for ways on how to get to the intensive care unit for their own child. It is difficult for parents, traumatic for children and no one is immune from this. Therefore, take part in the discussion of the project. published a lot of material about how things are now with visiting a child in intensive care, and how it could be.

Modern Ukrainian intensive care units can be described in three sentences:

  • These are children who lie in intensive care and die all alone.
  • These are parents who are on duty under the door of the department for a few minutes of a visit, and who cannot be near their children until the end.
  • And these are doctors who are forced to deny parents unimpeded access to the child - and they take on the difficult responsibility of reporting serious news in the event of a patient’s death.

There are no winners in this story. The victims of the closed mode of intensive care are patients and their relatives, and doctors. Although the law does not prohibit open treatment in such departments, the hospital management restricts access to intensive care, ostensibly fearing the spread of community-acquired infections.

But employees of the Western Ukrainian Children's Medical Center in Lviv, who have been letting parents into intensive care for 25 years, say: there were no infectious outbreaks in all this time in the department.

The most dangerous for patients are just nosocomial infections, they are not brought in from the outside.

We tried to find out whether it is possible to get out of this situation peacefully and to ensure the fulfillment of the rights of patients and their parents, without complicating the work of doctors.

Read also:Children's resuscitator: every day hundreds of children die because of the stupidity of their own parents

Tie tight

Our story began with Pasha. Pasha was a ward of the Tablettochka charitable foundation. At the end of last year, the child received bone marrow transplanted from an unrelated donor in Italy. But the operation did not help, the disease returned. Doctors recognized the five-year-old Pasha terminally ill and was discharged home. The child died five days after returning to Ukraine.

Pasha spent his last two days in intensive care at the Okhmatdet hospital. According to Lyubov Grom, Pasha's mother, the child lay in the ward without clothes, and his hands and feet were tied to the bed so that he could not tear out or damage the vital equipment. The nurses told Luba that on the first night, Pasha loudly called for help from parents.

“The first day I was not allowed into his ward. My husband and I understood that these were the last days of Pasha, and we wanted to take him home. But the manager explained to me that Pasha would start choking, and I would not be able to look at it, that the child needed a ventilator. Therefore, we left our son in intensive care, and he was hooked up to the ventilator. ”

Pasha's parents obtained permission to stay with his son through the head physician, but by that time the child was already in a coma.

“I went into the ward, talked to my son, said that I loved him and that he was not afraid. After that, he died.

We are lucky that we were with Pasha in his last moments, even though he was unconscious. But I cannot forgive myself for having spent those two days tied to the bed, that he was afraid and called us, and we could not come to him ... ”

Pasha's story is not the only and not the last. This is a template in which you can put the story of many parents. There are few hospitals with open resuscitation in Ukraine.

It cost the pediatric anesthesiologist of the Rovno Oblast Children's Hospital Pavel Silkovsky to write in about Ukrainian resuscitation how a hundred similar stories spilled out in comments: watch under the doors of the departments, bribes to the medical staff for an extra-hour pass to the ward, tied to the bed of frightened children.

“After the birth, my son was immediately taken to intensive care, and these two weeks were the worst in my life. I stood at the door of the intensive care unit and could not see the barely born child. Then for a specific amount of money they let me in to him, allowed me to change clothes and even take them in my arms, ”writes Tina G.

“My son is almost 3 years old.The other day, he was brought to intensive care because of poisoning, his arms and legs were tied to the bed. And we were not allowed. You cannot imagine what state the child was after those two days, and what happened with us while we were waiting at the door, ”writes Sofia D.

The easiest thing in this story is to reduce the entire text to mutual accusations. Patients versus doctors - physicians versus patients. But this is unlikely to help solve the problem.

It is very important to understand that doctors do not allow relatives to patients is not out of malice. They just do not think, and sometimes they don’t know that it can be different, that open resuscitation is normal. They do not know and do not want to know.

Read also:How to give first aid to a child: every parent should know

Ban without ban

The law does not prohibit visiting resuscitation. Neither adults nor children.

“Ukrainian legislation directly provides for the right of any patient of the hospital to admit family members to it. Moreover, with respect to children, additional guarantees have been established that allow close relatives to stay with them in a medical institution. There is no legislation for special regulation or exemptions for resuscitation units, ”says Victoria Podvorchanskaya,Head of the Practice of Pharmaceutical Law and Health Protection, YB Egorov, Puginsky, Afanasyev and Partners Ukraine.

Not allowed into intensive care for a child: how parents protect their rights - image number 1

Article 287 of the Civil Code:“The patient of the hospital has the right to admit other medical workers, family members, guardian, caregiver, notary and lawyer to it.”
Article 64 of the Basic Laws of Ukraine on Health Care:“Moms or other family members can be kept in a health facility if children under 6 years old are treated in the hospital. You can stay close to seriously ill children over 6 years old, if, in the opinion of doctors, they need maternal care. The parent or guardian should be provided with free food and living conditions. ”

Violators of these norms bear civil, administrative or criminal liability in accordance with the law, according to Article 80 of the Fundamentals.

UN Convention on the Rights of the Child: “Participating countries should not allow situations where children are separated from their parents against the wishes of the latter. Decision on separation from parents can only be made by the court or the competent authorities if the child is in danger (for example, if the parents treat the child cruelly or do not care for him). ”

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Hospitals restrict access to patients in intensive care by internal instructions, referring to safety concerns, lack of necessary conditions, and so on.

The trick consists in these internal instructions, since, by signing an informed voluntary agreement for treatment, the patient or his legal representative (parent or guardian) is obliged to fulfill all the prescriptions of the doctors and adhere to the established regime for the patient.

Read also:Clowns, animators and SMS alert: how are children's operations in Israel

Infectious blockade

Doctors have several arguments in defense of their ban. The first and standard answer to the question of why a resuscitation is closed to the public is the sanitary norms and the protection of patients from external infections.

Stories about infections from the street is a myth. Doctors themselves go between offices, not changing clothes. Moreover, they go outside to smoke. The most important thing is the treatment of hands before contact with the patient. All other infections from the outside are killed by solutions and quartz treatment. Hospital infections are dangerous for the patient, ”says anesthesiologist Pavel Silkovsky.

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Visitors are rarely carriers of nosocomial infections, unlike medical staff. Hospital infections are most often resistant to antibiotics and enter the human body through dust, water (especially if the water supply system is worn out), food, medical equipment and tools.

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Infections are not the only argument of doctors. The hospital may not allow parents to resuscitate if there is not enough room for this place, and there are several patients in the small wards. Relatives should not violate the peace and privacy of other children.

But foreign clinics in this case provide a screen between the beds of patients and make clear schedules of visits for relatives. It is out of the question to not let them into the ward at all, or to let them just for a few minutes.

In the intensive care unit for newborns of Lvov Okhmatdat, the size of the room does not allow parents to be near their child around the clock. However, relatives can go to the office at any time.

Whereas if the parents are allowed into the intensive care unit of the main children's hospital of the country, the OHSmatdet, then only once a day for 15-30 minutes.

In Ukraine there are only a few hospitals with open reanimations. For example, the Center for Pediatric Cardiology and Cardiac Surgery in Kiev, the Western Ukrainian Children's Medical Center and the BSC KSP in Lviv.

In the Kiev Cardiology Center, better known as the “Emets Clinic”, visits are not only not prohibited, but encouraged. You can enter the intensive care unit in a dressing gown, shoe covers, mask and cap, and before entering, you must thoroughly wash your hands and treat them with an antiseptic.

In a number of departments, there is no strict procedure for visiting intensive care units. Some doctors themselves go to the relaxation of the regime contrary to the instructions of the manual.

"Everything is much easier - the doctors do not want to let parents in the intensive care unit, simply because it's more convenient. Personally, I feel more comfortable without extra eyes. We are not used to explaining our every step, as they do, for example, in the States. And relatives will ask questions to doctors. Moreover, they have the right to do so, ”says Pavel Silkovsky.

When I see that, by all indications, the child dies — and here someone dies almost every week — I try to make sure that the parents are with him to the end.So many people thanked me later for those last minutes nearby, you have no idea. Despite the terrible tragedy in life, these parents were morally much easier than those who stood at the door and could not say goodbye, the anesthesiologist says.

Children are tied to beds because there are no nurses for each patient. And patients can actually pull out their catheters and other tubes.

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And here's the situation: there are not enough nurses, children are tied up - and parents in the corridor without work sit praying and crying. And they could hold their children by the handle and keep track of all the tubes.
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And it also happens that children after resuscitation are strongly offended by their parents: they believe that they were abandoned. Being in reanimation alone, children receive a strong psychological trauma.

Often parents "breaks" in intensive care. Their inability to keep themselves in their hands is one of the main and not unreasonable claims of the doctors, since relatives harm both themselves and patients with unnecessary emotions. But people should not cope with emotions on their own, in hospitals — psychologists must work for this, their help is needed both by patients and relatives.

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  • Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights

    Do not let in reanimation to the child: as parents to protect their rights